SIDS SUDI Europe 2022

Joffre Hall (Level 1)Congress registration

Joffre A+B room (Level 1)Welcome introduction

 

Inge Harrewijn and Odile Pidoux (Montpellier - France)

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Film Italy

 

Plenary session

Joffre A+B room (Level 1)The continuing decline in SIDS mortality rates and the way forward

 

Moderation: Martin Chalumeau (Paris - France), Fern R. Hauck and Rachel Moon (Virginia - USA)

• National variations in recent trends of sudden unexpected infant death rate in Western Europe
  Sophie de Visme (Nantes - France)

• From observation to intervention: identifying families at high risk of SUDI
  Pete Blair (Bristol - UK)

• Improving uptake of safer sleep advice: SIDS prevention for families with infants at increased risk
  Anna Pease (Bristol - UK)

• Recent historic increase of infant mortality in France
  Martin Chalumeau (Paris - France)

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Round table discussion

Joffre Hall (Level 1)Coffee break - Visit of exhibition & Posters

Plenary session

Joffre A+B room (Level 1)SIDS/SUDI registries: actual experience

 

Moderation: Richard D. Goldstein (Boston - USA), Pete Blair (Bristol - UK) and Christèle Gras-Le Guen (Nantes - France)

• The English National Child Mortality Database: Insights from identifying and investigating ALL deaths of infants and children
  Peter Fleming (Bristol - UK)

• The French prospective multisite Registry on sudden unexpected infant death (OMIN): rationale and study protocol
  Karine Levieux (Nantes - France)

•  The sudden unexpected infant death case registry: a method to improve surveillance
  Sharyn Parks Brown and Alexa Erck (Houston - USA)

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Round table discussion

• Feasibility of European registries

Joffre Hall (Level 1)Lunch - Visit of exhibition & Posters

Parallel sessions

Joffre A+B room (Level 1)Harmonisation of investigations on the causes of death

 

Moderation: Caroline Rambaud (Paris - France), Arne Stray-Pedersen (Oslo - Norway) and Patricia Franco (Lyon - France)

• Sudden Infant Death Syndrome: current investigations and virological documentation from the French SUDI registre
  Lise Martin-Perceval (Nantes - France)

• Importance of the extent of death Scene investigation for cases of Sudden and Unexpected Death of Infancy (SUDI)
  Torleiv Ole Rognum (Oslo - Norway)

•  Essentials of the autopsy work
  Marta Cohen (Sheffield - UK)

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Round table discussion

Joffre C room (Level 1)Free presentations on SIDS and SUDI

 

Moderation: Hugues Patural (Saint-Etienne - France) and Rosemary S. C. Horne (Melbourne - Australia)

Short oral presentations: Harmonisation of investigations on the causes of death

• Feedback on a protocol for the management of sudden infant death syndrome
  Agathe Bascou (Toulouse - France)

• Assessing retinal hemorrhages with non-invasive post mortem fundus imaging in sudden unexpected infant death (SUDI)
  Jean-Baptiste Ducloyer (Nantes - France)

• Risk factors for unexpected infant death among very premature infants in France
  Patrick Pladys (Rennes - France)

• A successful collaboration: 24 hours cardiorespiratory recording in infants with surgical congenital anomalies
  Giulia Costagliola (Turin - Italy)

• Study of stress, hypoxia and post-mortem delay markers in unexpected infant death syndrome (SIDS/SUDI)
  Antoine Coquerel (Caen - France)

• Role of pathogens in Sudden Unexpected Death of Infancy: A 10-year review of the PACA West SUDI reference center, University Hospital, Marseille
  Patricia Garcia (Marseille - France)

• Aquaporin 4 expression in the hippocampus in sudden unexplained infant death
  Johanna Marie Lundesgaard Eidahl (Oslo - Norway)

• Butyrylcholinesterase is a potential biomarker for SIDS
  Carmel Harrington (Sydney - Australia)

Joffre D room (Level 1)European Parental Associations - Session 1

Moderation: Christine Tran-Quang (Naître & Vivre - France), The Lullaby Trust, Sa Vie and Les Rires d’Anna

• Presentations (organisation, actions, prevention strategies, support of bereaved families)

Workshop on registries for SIDS/SUDI/Sudden death in the young - Session 1 (on registration)

Joffre 4 room (Level 1)

Moderation: Pete Blair (Bristol - UK), Peter Fleming (Bristol - UK), Karine Levieux (Nantes - France), and Joanna Garstang (Birmingham - UK)

The aim of this workshop is to discuss the faisability of implementing registries in Europe

• Advantages of creating registers in Europe

• Agenda and modalities for the implementation of national registries

• Common minimal data needed for a European registry

Joffre Hall (Level 1)Coffee break - Visit of exhibition & Posters

Parallel sessions

Joffre A+B room (Level 1)Investments likely to explain the cause of death

 

Moderation: Christèle Gras-Le Guen (Nantes - France), Gilles Cambonie (Montpellier - France) and Rosemary S. C. Horne (Melbourne - Australia)

• Contribution of metabolic invetigations
  Cécile Acquaviva-Bourdain (Lyon - France)

•  Cardiologic findings in SIDS cases
  Alban-Elouen Baruteau (Nantes - France)

• Radiologic contributions to the investigation of SIDS
  Ikram Taleb Arrada (Montpellier - France)

• The Past, Present and Future of SIDS
  Richard D. Goldstein (Boston - USA)

• SNPs in SIDS
  Germaine Liebrechts-Akkerman (Apeldoorn - Netherlands)

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Round table discussion

Joffre C room (Level 1)Free presentations on SIDS and SUDI

 

Moderation: Ursula Kiechl-Kohlendorfer (Innsbruck - Autriche), Adèle Engelberts (Amsterdam - Netherlands) and Rachel Moon (Virginia - USA)

Short oral presentations: Investments likely to explain the cause of death

• Ogival palate and Sudden Unexpected Death in Infancy (SUDI)
  Caroline Rambaud (Garches - France)

• The ogival palate: a new risk marker of Sudden Unexpected Death in Infancy?
  Mathilde Ducloyer (Nantes - France)

• Saved by the bell? A case report concerning an extreme preterm born infant monitored during sleep at home with a cardio-respiratory memory machine
  Sonia Scaillet (Brussels - Belgium)

• Unexplained infant deaths in bed-sharing situations versus in own bed – Both may be designated SIDS, but are they two different entities?
  Silje Osberg (Oslo - Norway)

• Death of an infant in the setting of a COVID 19 delta variant infection
  Patricia Garcia (Marseille - France)

• Five cases of Sudden Unexpected Death in Infants (SUDI) treated with propranolol for hemangiomas
  Antoine Coquerel (Caen - France)

Joffre D room (Level 1)European Parental Associations - Session 2

• Proposition to create European parental working groups

Workshop on registries for SIDS/SUDI/Sudden death in the young - Session 2 (on registration)

Joffre 4 room (Level 1)

Moderation: Pete Blair (Bristol - UK), Peter Fleming (Bristol - UK), Karine Levieux (Nantes - France), and Joanna Garstang (Birmingham - UK)

• Proposition to create working groups on registries in Europe

• Registries: how will we move on

Congress dinner